Showing posts with label Coumadin. Show all posts
Showing posts with label Coumadin. Show all posts

Friday, March 16, 2012

DAYS 10 & 11 - Recovery


It's days like yesterday that make me wonder if I'll ever feel good again.  I was so totally miserable - extremely weak, short of breath, very painful lungs, and nauseated. I carried a barf pan everywhere. That's not a fashion  accessory that will ever catch on.  It took all my strength and energy just to walk across a room, yet we had to be on the go all day. 

The Coumadin check was our first stop.  I've taken none of this blood thinner since Monday, yet my blood remains dangerously thin.  I was told not to take any until Sunday and then only a half dose and return Monday for a recheck.  If they can't get my blood thickness to say within the desired parameters with this drug, I'll have to take twice daily injections.  

From there we drove to SC to meet with the hematologist. I've seen more than my share of medical offices , yet I've never seen one as well run as this one.  They have an on sight lab with several technicians and the whole thing was run like clockwork.  There was no waiting.  The hematologist found that I have a rare blood clotting disorder which puts me at high risk for blood clots leading to strokes.  Women with this disorder usually have multiple miscarriages.  I've had five.  This hyper clotting was the cause of the blood clots in my lungs after the surgery.  Even though they had me on a boatload of blood thinners, it wasn't adequate to cover the hyper coagulation.  This isn't the news I wanted to hear because this means I'll need to be on blood thinners the rest of my life.  This genetic disorder may be the reason so many of my relatives die of strokes.  The hematologist wrote me a prescription for some anti-nausea medicine so I got some relief late in the day. This drug makes me so drowsy I can't stay awake, but if I can hold down my food maybe I can start gaining back some of my much needed weight.

Our last stop was at a diagnostic center to have chest x-rays in preparation for my follow up visits with the heart surgeon and lung doc next week. 

Today was a great improvement over yesterday. Although the pain in my lungs was resistant to the pain meds and I was short of breath with much coughing, I was able to do some household chores.  I walked here, plus I did 3/4 mile on the outdoor track. The last quarter mile was a killer, but I have to keep pushing myself if I'm going to see continuous improvement.  The track has a resident eastern bluebird.  We saw him last time and he was there again today sporting his rosy breast and intensely blue feathers.  He perches on the back of one of the benches and watches the walkers go by.  

3/10 Meds:  Multaq, Bupropion, aspirin 81mg, Furosemide, Namenda, Metroprolol, Zantac, potassium, multivitamin, vitamin D, I-Caps, Tramadol/Apap, Promethazine
3/11 Meds:  Multaq, Bupropion, aspirin 81mg, Furosemide, Namenda, Metroprolol, Zantac, potassium, multivitamin, vitamin D, I-Caps, Promethazine, Mucinex

Tuesday, March 13, 2012

DAY 8 - Recovery


This was by far my most challenging day.  After a marathon night of coughing and, at most, two hours of sleep, I attended the cardio rehab orientation. There was no way I could do any walking today.  It took every ounce of my strength and will power just to hold my body upright in a seated position during the one-hour session.  This medically supervised program, which offers  custom tailored rehabilitation exercises meets for one hour three days per week for three months.  Most of the work is done on treadmills, stationary bikes and various other fitness machines.  Statistically women are poor participants.  Most of those that do begin, become dropouts. There are some doctors that don't even refer women to the program.  In my group of six today, I was the only woman.  One other was supposed to be there but no-showed.  Two weeks in a hospital bed and many days of not being able to eat has taken a devastating toll on my body.  Surprisingly my hair and nails have had a growth spurt. Being rail thin, I'm lost in my clothes and what little muscle is left has a disgusting soft and squishy feel.  I'm really looking forward to this rehab program and hope to begin in a couple of weeks once my doctors give me the go ahead.  I just hope it's possible at my age to rebuild muscle and restore fitness to my aging body.  I don't want to be one of those frail little 70-year olds who lift nothing heavier than a tea cup.  I have too many more horses to ride, mountain trails to hike, fences to build, and land to till.

From the rehab orientation we met with my local cardiologist.  An EKG showed my heart working beautifully.  My lungs sounded clear except for congestion in the bronchial area.  The pain in my lungs continues and has become worse this evening. 

We stopped by the lab at the cardiologist's office to have my Coumadin level checked.  Coumadin is the blood thinner med I'm taking because of the blood clots. The reading was dangerously high, which means my blood is dangerously thin.  No running with scissors for me and no playing with any other sharp objects.  I have to go back on Thursday for a recheck.

Meds:  Multaq, Bupropion, aspirin 81mg, Furosemide, Namenda, Metroprolol, Zantac, potassium, multivitamin, vitamin D, I-Caps, Tramadol/Apap, Temazepam, Mucinex

Saturday, February 18, 2012

DAY 3 Pre-Op


I feel a need to defend myself here, least you make a judgment call that I've brought this whole broken heart thing upon myself by a total lack of discipline in lifestyle and eating habits. OK, so I'd never convince any jury of my innocence if they saw me sitting on a bar stool at Elmo's Pub stuffing myself with a triple bypass burger and a large order of hot just-out-of-the-grease homemade potato chips.  It's also probably not the best evidence knowing that if you dangled chocolate covered bacon in my face, I'd follow you anywhere and everywhere.  But, Your Honor, let me explain.  Recently a friend said, "If YOU can have a heart attack, anyone can have a heart attack."  She said this while standing before my 123 lb, 5-ft 6-inch body.  (I'll pause here to give you ample time to hate me.  No, I don't starve myself, actually I don't do anything, apparently it's a by-product of having my father's French genes. Go ahead, hate me even more.)  I was a runner, never smoked, a veggie lover, as a kid I could eat my weight in spinach, carrots and asparagus (I had lutein coming out of my pores, how did I end up with macular degeneration?) and I drink all the right juices.  OK, so sometimes I dilute them with a little vodka, but how bad can a clear liquid be?  So what more could a heart ask for? 

Two years ago when I called the pulmonary specialist because I had such shortness of breath I couldn't walk up a flight of stairs without taking a couple of breaks, both the lung doc and my husband told me to get my sweet self to a cardiologist.  Immediately!  That said cardiologist said I had to go to the hospital immediately.  Hospital?  Immediately?  No way, I had things to do.  The cardiologist said I wouldn't be doing anything if I was dead.  Since he put it that way, I said OK.  He said it was A-Fib (atrial fibrillation), an irregular heartbeat, an arrhythmia.  So my heart doesn't have the proper rhythm. That explained a lot.  There really was a legitimate reason why I couldn't dance, why people around me looked at me funny when we clapped to the beat of music, and why I couldn't make a Clapper lamp go off and on.  Whatever happened to that marching-to-a-different-drummer thing?

The cardiologist said I had to take lots of meds. I said I'm not big on taking lots of meds. He said Coumadin and I said no.  Way too many side effects.  Instead, I agreed to take a full-strength aspirin.  The meds plus the aspirin did OK for some time. I also consulted with my brother-in-law who is a cardiologist in Nashville. Then I moved to a new city and got a new cardiologist who replaced my aspirin with Multaq, a newly minted med.  It did fine for a while, but not for long and I ended up in the hospital two more times.  A cardioversion was done the second time. The electric shock burned the heck out of a spot on my back, but it brought my heart back to perfect rhythm … for all of 15 hours. After that things started getting bad, fast.  The doc and I were tossing around different ablation procedures.  A raging infection in a molar that recently had a root canal and new crown couldn't be controlled by five rounds of four different antibiotics, in addition to oral surgery.  My heart was not handling this well.  Since it's known that oral infections can play a role in heart disease, and even though I had invested $3300 (my hot tub money) in this molar, extraction was the only option.

What an improvement!  Why, oh why, hadn't we yanked out that tooth much earlier?  My heart returned to perfect rhythm, but I still couldn't dance.  I don't know about the Clapper light because I'd already taken it back to the store since it didn't work.  Well, actually it worked for my husband and sons, just not for me. 

Two weeks later I was planning to run a victory lap around my cardiologist office while telling him we could forget about that ablation stuff, but he stopped me in my tracks, telling me my heart was still in A-Fib.  Some people really know how to bring you down.  Admitting that my heart was way too stubborn for his expertise, he referred me to a cardiologists' cardiologist in a nearby state.  There we kicked around Tikosyn, considered the drug of last resort.  I'm generally a risk taker, but this med was way beyond my comfort level.  Initially it must be administered by a doctor specially trained in it's application, not many are, and it must be done in a three-day hospital setting.  We got back to thinking about ablation since we were running out of options, so the cardiologists' cardiologist referred me to a cardiothoracic surgeon. 

The least invasive ablation is non-surgical, using a catheter through the groin to gain access to the heart. I nixed that one because of its lower success rate, especially with my A-Fib being chronic.  It often needs  to be done multiple times and  I really wanted the person doing it to be able to see what they're doing not going through my leg to get to my heart.  A minimally invasive surgical ablation, where several smaller incisions are made along both sides of the chest wall instead of a large incision down the front of the chest and where the heart does not have to be stopped, looked like the path to take.  It’s sometimes not recommended for women because the incisions have a rough time healing since they are positioned right along the bra line.  That would be no problem for me since I rarely wear a bra. 

All that sounded well and good.  I was excited that we had a plan and I was thinking we were finally on the fast track to a cure when the cardiothoracic surgeon noticed something going on with my heart that all the other cardiologist overlooked.  He brought in another specialist and after more testing, it was determined that one of my four valves was messed up.  There it was, in a video on the computer screen, live and in color, plain and clear.  This malfunctioning mitral value could be the root cause of my arrhythmia.  Wow, now we were getting somewhere!  We were high-fiving all around.

The docs suspect I had undiagnosed rheumatic fever as a child and it caused damage to this valve.  After hearing from my cousin last night, I'm wondering if it could be genetic, although with mitral valves that usually isn't the case.  Almost everyone in my family dies of strokes, many at an early age.  My cousin shared that her mother and our uncle both had valve problems. My uncle declined surgery and died shortly after being diagnosed, her mother had surgery and lived another 15 years. 

Repairing the valve, rather than replacing it, is the better option and my surgeon feels certain he can accomplish that.  He'll also clamp off the atrial appendage as a prevention for strokes and do the Cox Maze III ablation procedure to bring my heart back to proper rhythm while he's in there. He gives me a 95% chance of success for a full cure. Pretty good odds, don't you think?  However he won't give me any guarantees that any of this will improve my dancing or my ability to operate one of those clap-on clap-off lights, but hey, an old gal can hope.

Meds: Diuretic, beta blocker, anti-depressant, vitamins and supplements