The recliner is my
daytime place. The bed is my nighttime
place. I was in bed last night for
eleven hours, most of that time was spent coughing. I have no idea how Darryl was able to get any
sleep. The coughing must have been
productive because I no longer have the continuous pain in my lungs that has
been there since the blood clots were discovered ten days ago. Feeling totally and completely exhausted,
there was no way I could celebrate this good news.
A hematologist and a
pulmonary specialist were added to my medical team once the clots in my lungs
became an issue. I have follow-up
appointments with both during the next two weeks. I just completed 12 pages of insurance and
medical history forms for the hematologist.
Does he really need that much information? I've never heard of anyone going to a hematologist. I thought they were more scientists that
studied blood rather than practitioners who interacted with patients. Makes me wonder if there might be some
vampire types lurking around his waiting room.
I feel such a great
need for sleep but it eludes me. I've washed dishes and paid bills. It feels good to do some ordinary
things. I need to eat to both gain
energy and gain weight, but the least little bit of food fills me up. I've lost a pound a day since I've been home,
hopefully bottoming out today at 114 lbs.
Darryl's patient,
attentive and loving care giving has been extraordinary. I'm so fortunate to have such a good man as
my husband. I know there are many people
who have to go through situations like this alone. I don't know how they do it. Once my appetite and taste for food returns,
I know I'll gain my weight back quickly with Darryl's yummy meals. Today he baked a ham with a wonderful glaze
along with baked sweet potatoes and a chopped cabbage and broccoli salad. I wish I could have eaten more.
This isn't the first
time that Darryl's had to exercise his care giving chops. We were living in New Orleans two dozen years ago when, at age 46, I was
pregnant with Douglas and had to be put on complete bed rest for 2 1/2 months. Things were even more challenging then since
we had a big place, Darryl was working full time running his business and our
super hyper-active Jonathan was 3 years old.
Darryl's family and our wonderful network of friends came to our rescue
with his care so that Darryl could focus on my needs. We made it through that and now we'll make it
through this.
Meds:
Coumadin, Multaq, Bupropion, aspirin 81mg, Furosemide, Namenda,
Metroprolol, Zantac, potassium, multivitamin, vitamin C, vitamin D
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